From Vision to Action: Building Well-Planned Organizations

This edition of the Academy was dedicated to effective planning of patient organization activities and the development of strategic growth plans. Each day, participants focused on strengthening a different area of planning.  We aimed to empower participants with key insights and practical competencies applicable to their daily activities.

An Unprecedented Edition of the Academy

A record number of 59 participants from five continents took part in this edition, representing 17 rare diseases and making it a truly global experience for collaboration and learning.

The Growth Map: Key Skills Developed

Our pre- and post-course surveys highlight a transformative learning experience. We recorded clear progress in all evaluated areas, with growth rates peaking at 57%. With an average overall improvement of 34%, the Academy has effectively elevated the strategic toolkit of every participant.

We couldn't be prouder! Every single respondent expressed interest in joining the PatientAdvocacy.Academy again - including a staggering 91% who are "Definitely" coming back.

Participants' feedback

“...I would like to take this opportunity to express my heartfelt gratitude to you for sharing your knowledge with us. The videos were incredibly educational, and I found Adrian's experiences and the tips he shared during the online video circles especially insightful and impactful.”

Marvelous Ibiyemi

Nigerian Cardiac Community

“I was honoured to be accepted onto the PatientAcademy.Academy 2025, an experience that was both highly informative and professionally enriching. As an ambassador for Nerve Tumours UK, the Academy equipped me with valuable knowledge and practical skills that have significantly strengthened my ability to fulfil my role with greater confidence and effectiveness. (...) The opportunity to engage with fellow participants further enhanced the experience, offering meaningful insights, shared learning, and the chance to build valuable connections across the sector.”

Georgia Baum

Nerve Tumours UK

If you want to learn more about PatientAdvocacy.Academy 2025: Well-Planned Organization, please click here to check our report in the PDF file.