Board of Directors & Staff
We believe that successful patient advocacy leads to comfortable and happy lives for millions of people with different conditions.
That is why we so willingly share our experience and look for new solutions in healthcare education. Our aim is to ensure the best possible standards of care and therapy for people with chronic and rare diseases. To fulfill this purpose, we mainly focus on preparing studies and reports and providing education for patient advocacy groups, physicians and other healthcare professionals, using the advantages of new technologies.
Board of Directors
Adrian Goretzki, LL.M.
Founder, President of the Foundation
From 2010 to 2018, he served as leader of the Polish Association for Patients with Primary Immunodeficiencies “Immunoprotect” and was a member of the executive board of the international umbrella association, the International Patient Organization for Primary Immunodeficiencies (IPOPI). For his achievements in patient advocacy, he has received numerous awards, including the Luciano Vassali Award (2014), the Rector’s Award from the University of Silesia (2020), RARE Champion of Hope (2022), and the EURORDIS Black Pearl Award (2023). A professional lawyer, advisor, and keynote speaker, he is fascinated by the potential of new technologies in the field of education.
Bernadeta Prandzioch-Goretzki, M.Psy, B.Ed
Vice-President of the Foundation
Psychologist with extensive experience in supporting patients with rare diseases, active in this field since 2014. At the Institute, she is responsible for the scientific dimension of our work, coordinating studies and preparing analytical reports. Her research focuses primarily on the quality of life of people living with rare diseases. She is the author of two handbooks for patients with primary immunodeficiencies and a successful TEDx speaker whose talk has reached over 400,000 views on YouTube. In 2014, she received the Rector’s Award from the University of Silesia.
Executive Staff
Kamila Rzepka, LL.M.
Senior Project Manager
A lawyer by profession with a strong background in working with patient groups, especially in the field of rare diseases. From 2014 to 2018, she served as Project Manager at the Polish Association for Patients with Primary Immunodeficiencies “Immunoprotect.” At the Institute, she coordinates key projects and builds partnerships with patient organizations, focusing on reimbursement policies, access to treatment, and the protection of patients’ rights. Combining her legal expertise with in-depth knowledge of rare diseases, she prepares analytical reports on the legal landscape in healthcare, supporting evidence-based advocacy and policy change.
Anna Szychulska, M.A., B.A.
Project Manager
A graduate of Lodz University of Technology, she also studied at the University of Aveiro and the European University of Lisbon. In 2020, she received the Rector’s Award from Lodz University of Technology. In recent years, she has worked as an art educator, contributing to numerous humanitarian projects. Her experience includes working with diverse vulnerable groups, such as asylum seekers in Bosnia and Herzegovina, hospitalized children in Armenia, and people with disabilities in Poland. Her work has consistently been rooted in international cooperation and aimed at creating lasting social impact. At the Institute, she is responsible for managing ongoing projects.