Board of Directors & Staff
We believe that successful patient advocacy leads to comfortable and happy lives for millions of people with different conditions.
That is why we so willingly share our experience and look for new solutions in healthcare education. Our aim is to ensure the best possible standards of care and therapy for people with chronic and rare diseases. To fulfill this purpose, we mainly focus on preparing studies and reports and providing education for patient advocacy groups, physicians and other healthcare professionals, using the advantages of new technologies.
Board of Directors
Adrian Goretzki, LL.M.
Founder, President of the Foundation
From 2010 to 2018, served as leader of the Polish Association for Patients with Primary Immunodeficiencies 'Immunoprotect’ and was a member of the executive board of the international umbrella association, the International Patient Organization for Primary Immunodeficiencies (IPOPI). For his successful patient advocacy, Goretzki was given the Luciano Vassali Award in 2014, the University of Silesia Rector’s Award in 2020, RARE Champion of Hope in 2022 and The EURORDIS Black Pearl Award 2023. Professional lawyer, advisor, and keynote speaker. Fascinated with opportunities given by new technologies in the field of education.
Bernadeta Prandzioch-Goretzki, M.Psy, B.Ed
Vice-President of the Foundation
Psychologist experienced in working with patients with rare diseases, active in this area since 2014. At the Institute, she is responsible for the scientific part of our job, focusing on coordinating studies and reports. Researching the area of quality of life in patients with rare diseases. Author of the handbook for patients with primary immunodeficiencies, "The Fullness of Life". Successful TEDx speaker (400k views on YouTube), author of many scientific publications and articles popularizing psychological knowledge, and participant in international conferences.
Kamila Rzepka, LL.M.
Senior Project Manager
A lawyer by profession with experience in working with patient groups. In 2014-2018 she worked as an project manager in the Polish Association for Patients with Primary Immunodeficiencies 'Immunoprotect'. At the Institute, she is responsible for coordinating ongoing projects and cooperation with patient organizations, mainly in matters related to reimbursement, access to treatment and the fight for patients' rights.
Anastasiia Doroshenko, MD
Project Manager: Ukraine Response
A physician specialized in pediatrics, with experience in working with children with rare diseases and their families. At the foundation, she is responsible for activities related to the comprehensive support of rare diseases patients from Ukraine fleeing the war – from support during the trip, through arranging accommodation, ensuring access to medical care and helping with formal matters. She also coordinates humanitarian aid for Ukrainian hospitals treating rare disease patients.