Our reports are based on comprehensive data from public sources and scientific papers, combined with expert opinions and research conducted among patients and physicians. We analyze key trends, identify challenges, and propose evidence-based solutions to improve healthcare accessibility, treatment personalization, and overall quality of life. Explore our findings, recommendations, and insights to help shape a more patient-centered healthcare system.

Legal Toolkit for Patient Advocates. Report on the patients’ participation in decision-making and law-making processes​​​​​ (2024) 

This report was born out of the real challenges faced by non-profit organizations working to defend patients' rights. Many struggle to navigate complex legal systems in their countries. Our goal was to provide them with practical, proven tools used successfully in different parts of Europe to help make their advocacy more effective. This report brings together these solutions in one place, offering valuable resources for any patient organization leader.

What makes this report unique is its emphasis on practical advocacy tools. We not only highlight existing legal solutions but also showcase alternative strategies that patient organizations can use to make an impact. The report provides a detailed breakdown of three key areas: legal tools specifically designed for patient organizations, general administrative procedures that anyone can use and alternative advocacy strategies to navigate legal limitations. To deepen the analysis, we also included expert insights from Tomasz Kluszczyński, Strategy Consultant and Founder of ACESO Healthcare Consulting, and Anna Arellanesová, Chair of Rare Diseases Czech Republic. Their perspectives bring valuable context to the challenges and opportunities in patient advocacy.

Plasma - life depends on it (2021) 

In 2021, we published the report “Plasma – life depends on it” on plasma donations and the use of plasma derivatives in Poland. The report presents the current situation in Poland: we discuss the Polish system of plasma collection compared to neighboring countries (Czech Republic, Hungary), we indicate groups of patients for whom PDMPs treatment is crucial and needs to be reimbursed. We also show what the situation in Europe looks like, what the trends are for the coming years, and therefore what challenges Poland faces in order to be able to provide patients with life-saving treatments.

Report available in English and Polish – click here to download: [ENGLISH], [POLISH].