Trainings for patient advocates
We have had the pleasure of conducting training sessions and workshops for patient advocacy groups and healthcare professionals on a number of occasions.
Every year since 2018, we have organized a PatientAdvocacy.Academy – the first ever online academy about patient advocacy – addressed to PAG representatives, especially those acting in the area of rare diseases. It is a 21-day event containing various activities: lectures, online meetings, exercises and many more. You can read more about each edition in the Online courses section.
In 2024, at the hybrid "Access to Care" conference in Vienna, attended by 70 representatives of patient organizations from across Central and Eastern Europe, Adrian Goretzki led a workshop on the legal mechanisms for involving patient organizations in decision-making and law-making processes.
In 2024, at an event for leaders of Polish rare disease patient organizations, Adrian Goretzki delivered two lectures: one on the legal structures of patient organizations in Poland and another on fundraising strategies.
In 2024, Adrian Goretzki conducted training for Polish patients with LAL-D, providing a step-by-step guide on applying for a disability certificate and a social pension.
In 2023, at the "Access to Care" conference in Vienna for patient advocates, Kamila Rzepka participated as an expert in the workshop "Policy Framework Opportunities for Amplifying the Patient Voice." During the session, she discussed potential initiatives to overcome access barriers and improve patient outcomes.
In 2022, Adrian Goretzki was one of the trainers during the "Access to Care" conference in Vienna for over 40 patient advocates from different countries and different disease areas.
In 2018, we conducted a 2-day training course for leaders of a PID patient advocacy group in Poland.
In 2016, Adrian Goretzki was a speaker in the session about fundraising for PAGs during the international congress of European Society for Immunodeficiencies in Barcelona.
In 2015 at an international meeting for PAG leaders in Budapest co-organized by Octapharma and Jeffrey Modell Foundation, we conducted a training session on patient communication, engagement and media relations.